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Old Tue Apr 9, 2013, 06:44 PM
vickij vickij is offline
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Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117
vickij

Like I said I am new at this and don't know all the correct terms yet. My Dr is a hematologist & cancer specialist. He is the one I was sent to and has done the bone marrow tests & treatments so far. After last blood test and needing a transfusion he sent me to specialist for his opinion. I think this Dr. was specialist in bone marrow & transplants. This 2nd Dr was going to meet with his team of specialists and recommend a treatment plan. He called today. He said I now have 5Q minus syndrome, and 5th chromosome that I didn't have last year.
He said their recommendation is for me to take revlimid (not sure of spelling) and have my sister tested to see if she is a match for transplant. If she isn't he wants to start search for a match. He mentioned other meds & a second treatment with rabbit serum this time. He talked with my Dr also.
I have appt. with original Dr this Thursday and may understand more. Now I take cyclosporine 50 mg twice a day & 5 mg prednisone.
You ask about support system, I have my husband & several close friends & a lot of people from my church.
I am not sure what a differential diagnosis is. I do remember 5 % blasts. Their is just so much info to remember. Dr recorded everything he said & gave me the tape, which I haven't listened to yet. Thanks for your info
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