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Hi Amy.
It's possible to live with mild neutropenia, but having an ANC below 500 is downright scary. Is the Neupogen helping?
Moffitt has a great program and much expertise, so I'm glad you're heading that way. I'm sorry you have to wait another month for your appointment.
Hypocellular bone marrow and a low white count (even without anemia) can be signs of aplastic anemia, but your karyotype with trisomy 18 and monosomy 19 would seem to rule out aplastic anemia. If it was aplastic anemia you'd expect to have normal cytogenetics.
One of my first questions to the doctors would be whether the neutropenia is a result of the autoimmune nature of lupus, i.e., the disease is attacking your white cells or white cell precursors, leaving you with insufficient immune protection. If not, how do they know there's more than lupus involved, and what do the ctyogenetitcs indicate?
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