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If you are on Facebook, there is a group of people with this.
Type in that name on the very top line that says "search for people places and things" and you will be the 100th member.
There is a very active discussion going on that may even help your doctor. Some are even from Australia.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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