Thread: Update.
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Old Sun Apr 28, 2013, 09:21 PM
Cam Cam is offline
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Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
Update.

Well it seems I made it through the first 100 days and did well. I then got the BK virus, then GVHD of the stomach. My last admittance to the hospital for MRSA (from my power line)/GVHD. Over the course of four days I went from a strong able bodied person to having to be lifted by my father into a wheel chair. And by the time I was admitted I could not walk and my right hand would not open. 13 days in the hospital later I have no muscle mass in my legs all my imune suppresion meds have been changed and I am home again slowly climbing back. The fight is not over but I am ready to start getting off all these meds. I often wonder sometimes if the meds are just as toxic as the disease.. I know I need them I am just ready for this journey to be over. I have now spent a total of 48 days in the hospital and I do not want to go back...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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