Hello Birgitta! Thanks for your reply!
Looks like umbilical stemcells is another way to do the BMT. There are not many public umbilical blood in China, some of them are owned by the parants(when the baby was born,the parants paid the money and stored the umbilical blood in the hospital in case some day they could use). i do not know how you are doing,however, we need to do better to increase the public resources to save people's life.
I consulted the doctor about conbinations of drugs, he gave me the answer that the result was better than just using Dacogen in the hospital, piror to the age and health of the patients, some patients are 60-70 years old are just using Dacogen, i hope he is right.
Yes,Revlimid is responded very well to 5q- patients, we have very a few patients with 5q- in China.
Quote:
Originally Posted by Birgitta-A
Hi Ti Lee,
As far as I understand they have many very good researcher in MDS i China. Your father is probably in good hands.
If they can't find a donor they could perhaps do a BMT with umbilical stemcells.
It is not common that patients get 3 different drugs at the same time but combinations of drugs seem to give better results so we can only hope the best.
Azacitidine (Vidaza) has given better results in studies but that eventually depends on that initially Dacogen was administrated in a suboptimal way - now it is given in the same kind of cycles as azacitidine.
As you know Kirby Stone responded well to Thalidomide - in the last years combined with Dacogen. We are all different and still none of the methods that can help us to know who will respond to a treatment is available except Revlimid for patients with the chromosome aberration 5q-.
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006. Positive results with Thalidomide + Prednisone since 2010.
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