Thread: High risk MDS
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Old Mon May 6, 2013, 09:25 AM
MDSPerth MDSPerth is offline
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Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
My partner Paul was diagnosed with hypocellular MDS (upper intermediate 2 to lower high risk) July 2013. All three lines were very low at diagnosis. Shortly after diagnosis his haemo started him on EPO and Neupogen. This kept him transfusion free for 9 months until he went to transplant On 4 April.

What is the driving factor that has given the high risk rating?
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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