Quote:
Originally Posted by Bhutt
Are there many people with high risk MDS that don't need transfusions?
Thanks
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No. Its rare to NOT to need a transfusion at some point. My Heme says as a rule Hg below 7 (for a male) its time for a transfusion. Otherwise, its symptomatic as he said if you feel dizzy @ 8.2 he'd recommend it.
As Sandi mentioned the docs they use had a plan to go straight to SCT and so they used growth agents and stimulators as opposed to transfusions. My doc on the other hand sent me for an 8 hr transfusion(2 units) when my hg hit 7.3. I didn't feel right. Dizzy, confused, really tired and brain fog they call it.
What he told me is he isn't worried about my blood so much as the blasts as he plans an SCT when an MUD is found. So, if I need blood once a month he wasn't worried b/c hopefully SCT comes and you don't need many.
How often does your doc check your blood? What are the numbers? like you I wouldn't have known when told but as the Hg dropped I suppose I would have collapsed or fell asleep in a car or ended up in an emergency room.
Good luck with your consultation.