alawe,
What happens to you depends on how severe your MDS is (see
MDS Classification) and what kind of treatments you get. The first goal is to make sure your blood counts don't get too low. Do you know what your blood counts are?
Revlimid is only one of the treatment choices (see
MDS Treatment). You might get transfusions, growth factors, immunosuppresive drugs, or chemo drugs. If your blood counts are very bad then you need
some treatment. If your blood counts are good then the doctor may want to wait and see what happens without any drugs yet.
Since you know that you have MDS 5q del, the doctor must have examined your bone marrow, so the doctor also knows whether your MDS is low-risk or high-risk. I think that you should ask your doctor about all the treatment choices that are available to you in your country, which one the doctor recommends, and why.
You and your doctor can both get detailed information about MDS from the
Aplastic Anemia & MDS International Foundation (they will send you a
free MDS packet) and the
MDS Foundation (download their
MDS handbook in your choice of language).