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Old Mon May 27, 2013, 01:44 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Dida,
1 Here are Centers of Excellens for MDS patients. Perhaps a clinic in the UK would be best for your father like King’s College London & King’s College Hospital London, United Kingdom.
http://www.mds-foundation.org/mds-ce...of-excellence/

2 Many patients get severe adverse reactions. I don't understand the platelet count - is it really 2.2? Many doctors try 6 cycles of Vidaza.

3 As far as I understand there are no herbs for MDS. The best treatment results I have seen is a combination of Vidaza and Revlimid with 72% of the patients responding. We have to know more about your father's disease for example if he has higher or lower risk disease to show results from clinical trials.

4 All treatments outside Jordan for example in the UK will be very expensive.
Kind regards
Birgitta-A
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