may34,
Even if your dad has followup tests (for years to come) it doesn't mean he's not cured or he's not done with treatment. Are there still signs of MDS or are they just monitoring his blood counts and bone marrow to make sure they are OK?
Has he experienced graft-vs-host disease (GvHD)? Perhaps that's what they're monitoring.
MDS treatment (before, during, and after) is indeed stressful on family members. You can look for support online at sites like this. You can join a local support group; see the
Communities of Hope list or our
Support Groups forum or post in our
Your Local Area forum to seek out others. You can find someone to talk to by phone via the AA&MDSIF
Peer Support Network. And you can check with your hospital since they may offer referrals to local support groups. You don't have to limit yourself to groups focused on MDS; you may get support that's just as good from groups that help families deal with leukemia and other cancers.