He had a really bad bout of Gut GVHD...I thought he might die. He spent 8 days in the hospital, puking and dry heaving, altered mental status..but he pulled through and feels better today than he's felt in almost 2 years. He still has some elevated BP and his hands are a little shakey, so using a mouse or touch pad results in alot of unintentionally clicking on stuff he didn't mean to causing some frustrations...but oh so much improved than just a week ago.
They have him on a high doseage of prednizone so most of his pains and stiffness has gone, has a good appetite and more energy that I've seen in a long time. He's getting stronger every day. This weekend will be going out to lunch...to a public place
. First time he's had medical permission to eat out in over a year. He's excited about that! Me too
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Angie, wife to Bill age 65; Diagnosed MDS May 2012; Post mini MUDD almost 2 years. Has some GVHD in mouth, otherwise doing well.