Oh, Greg, this is such great news that your hgb continues to hold. Boring news is good news in this crowd.
Also glad you're on phlebotimies now. Bruce discontinued Exjade as well, but not from side effects. Because his ferritin level got down to the mid 300's while taking a relatively low dose. Our doctor at UCLA said he's never seen anyone respond quite that positively to Exjade, given Bruce is still transfusion dependent.
So glad you checked in.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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