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Hi y'all!
Thanks for the good wishes. I wish I had Bruce's response to Exjade. My Ferritin is very stubborn. But I don't really mind the phlebotomies. It gives me a chance to visit with all my friends in the lab.
Don's response to Promacta is also amazing. I definitely remember when you all couldn't even travel because of frequent transfusion needs.
This is a very mysterious disease and I think we will know much, much more about it a decade from now. Hopefully, our participation in research trials will contribute to that increase in knowledge and make the road a bit easier for future MDS patients.
Take Care! It is seriously soggy down here in NC as tropical storm Andrea passes by. I'll bet it's none too dry in Richmond either, Sally.
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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