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Cam,
You are a very brave man and an inspiration to us all.
I'd like to share an inspiring story about a fellow AAMDS survivor in my support group...
About 15 years ago this fellow came down with AA and received a BMT. It went well for about 5 years, then returned as both AA and MDS. Second BMT, things were rough. Terrible GvHD of both the gut and skin that went on for months. Long stays in the hospital. In the midst of this, he came down with a brain infection. The doctors thought it highly unlikely he'd pull through and said so.
But slowly, after about 10 months things started improving, at 18 months he had enough energy to go back to work. He felt exhausted though for about another 18 months. At the 3 year mark, he started feeling his old self again.
Since then, he's been going strong for about 9 years now, he has his old life back. He's the head emergency room physician now at a hospital up in the Colorado Rockies, where he works 12 hour shifts, and enjoys time with his family on his off hours in their two homes (one in the mountains, one in town). This past winter, he skied a 30 mile cross-country ski race. So it is fair to say he has his energy back, and is very productive.
So, as you very well know already, there is hope. Keep fighting man!!!
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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