Progression to AML from MDS?
I would love to hear from anybody who developed AML or specifically, Leukemia Cutis from MDS, which I believe is a sub-type of AML. I was diagnosed MDS RA Low Risk one year ago and a skin biopsy of lesions reports "suspicious Lekemia Cutis." I see my Hematologist today but have to say I'm scared! I'd love to hear a good news remission or recovery story if you know of one thanks so much.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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