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Myelofibrosis in MDS patients
Hi Patti,
You know I have seen different figures for the frequency of myelofibrosis in MDS patients - 20 to 50%.
I have had very severe myelofibrosis since dx 2006 - in fact the first year my dx was Myelofibrosis though my speen was OK. I have had 6 BMB:s - it has always been impossible to aspirate due to the fibrosis.
I am JAK2 negative as most MDS patients and 50% of the Myelofibrosis patients.
As far as I understand myelofibrosis in MDS patients is a symptom that can decrease with effective treatment for the disease but all my BMB:s show the same picture though I responded very well to Thalidomide and was free from txs during more that 2 years.
I think Dean's blast cells are a greater problem than the myelofibrosis. Try to not worry about this new symptom. We hope you will get an appointment in Moffitt soon!
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006, positive results with thalidomide + Prednisone 2010-2013. Now trying Revlimid + Prednisone.
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