Quote:
Originally Posted by billyb
We get transfussions when we think we need them even if there not at the threshold level, I think some doctors are scared of iron overload or giving to much blood to soon, but even as everybody reacts different to different meds, everybody feels different at different levels, if the national standard is Hemo 8 and Hema 24%, before transfussion, someone else could be higher.
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Thank you Billy for sharing this with us. Wish we could get Dean's oncologist to understand. We hear one thing from Dr. Lancet in Moffitt, who said almost the same as you, and something else from Dean's doctor. At least Dr. Lancet acknowledged that Dean was feeling poorly, and raising the threshold level would probably help him, that the current levels appear to be too low for him.
Have to run and get to the hospital.
Love and hugs! Patti and Dean
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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