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Originally Posted by Susan L
Hi - went to the doctor yesterday - he told me I also have Fibrosis of my bone marrow at grade 3 which he said they grade 0 to 3. They are making an appt at Northside Bone Marrow transplant center to see what options I can have. Hoping for the best as I have no family so I dont know if an auto. stem cell transplant would be an option. Any comments welcome as I am lost right now.
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I can relate, as I'm in the same boat. No family, no friends close by, etc. & they want me to get an SCT. Yet a typical example of the misconception that everyone has family and friends to support them thru a transplant is right smack on the bethematch website. If you read "Caregiver" which is a prerequisite to qualify for the transplant, its assumed it will be a family or some huge network of friends and family, and neighbors. There's no "If you don't have family, neighbors and friends" then do this pathway. Your not alone. Good Luck, and I hope it all works out for you.