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Hi vicky
Of all the medications you have tried, was ibuprofen one of them?
I was diagnosed with MDS two months ago, and experienced severe bone pain. The only thing that could help me was ibuprofen (4x600mg a Day). Morfine had no effect on me.
I know that many hematologists don't like to use ibuprofen because Of the risks of GI ulcers, bleedings and heart problems.
In your case I would imagine that the biggest problem would be the low platelets. I have platelets in The range from 10-20 right now, and have no problems with bleedings, taking ibuprofen on a daily basis.
Hope you feel a little better soon.... Pain is just so exhausting, when we have to deal with low blodcounts etc...
Best regards
Rasmus
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