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Peachy, I'm 2 days away from completing round 4. My Doc warned me about the WBC & neuprogen before we started. Before my first round WBC was 5, HGB 7.5-7.9, and platelets 130k. After the 7 days of Vidaza 150mg. My WBC went as low as 2.5, but the hgb,and plates were unchanged. This was 3 weeks after the last infusion. When he saw the WBC @ 2.5 he said I can send you through and follow up with neuprogen shot or wait a week, lets do that. The next week my HGB was over 10, plates, 238,000, and WBC came back up to over 3. After the second round My WBC held up at 4.2 so I didn't need the neuprogen. The guy sitting next to me came in for a neuprogen injection, and I heard the nurse tell him that many patients have no side effects at all, and if you do its usually from the back or collar bone(I think) and to take a tylenol it doesn't last more than 24 hrs. Vidaza is a well tolerated drug, but my doc wrote me a script for Zofran to take an hour before infusion for nausea rather than have them infuse me with it. The nurse told me that they rarely inject it anymore because of the skin irritation issues. Anyway hope that puts your mind at ease a bit. The worst side effect I experienced was constipation one day, but because it lasted 1 day it might have been something else. Good Luck!! hope your husband gets a response after round 1.
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