Quote:
Originally Posted by revchris5802
Hi everyone, I have not had a diagnosis in 7 months and am worried. I don't fit any of the categories. I was diagnosed first with LGL Leukemia, but when they did the bone marrow bx they did not find any trace of it. What they did find was 10% blasts, but they are not dysplastic. They have tested me for everything form myeloma to genetic disorders to immune disorders, but nothing fits. However, my WBC is 1.5, neutrophils .3, platelets 73K and hgb. 9.8. All cell lines are affected, and while I do have mouth sores, and an ongoing infection in the genital area, I only have minor fatigue and headaches. I've had no treatment yet, but I worried about how long I can live with severe neutropenia and not be treated. Anyone else out there defy the categories? I'm in Rochester NY but I've had my blood results sent out to Stanford for a second opinion. I do not have fevers.
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Were those your counts 7 months ago?, they could be different now.
If you haven't been back for a checkup in 7 months it might be prudent to do so.
I don't think anyone here would ponder a guess at how long you can let this go untreated. Its probably not a great idea to wait for it to get worse. Roswell Park in Buffalo might be an option. Take Care,
Steve