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I had chronic idiopathic neutropenia ranging from mild to severe for about 6 years before being diagnosed with MDS 2 years ago. Although I have pancytopenia my biggest problem is still low white cells (WCC 1.2, Neut 0.46, Lymph 0.43, ANC 460 a couple of weeks ago). Like you I feel reasonably well most of the time.
I find I can manage quite well by avoiding sugary food and taking Echinacea at the first sign of a sore throat, Cranberry at the first sign of a UTI, regular exercise and a healthy diet. I think the gamma globulin infusions might help my immune system, even though they're not specifically for MDS.
I wish you all the best as you try to seek a diagnosis.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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