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Old Thu Aug 22, 2013, 09:53 AM
susanML susanML is offline
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Join Date: Aug 2013
Location: atlanta, ga
Posts: 66
Doug and Gramous

Hi - I am going thru the same situation right now - except I have already tried just about everything available for treatment for MDS. What really scares me now is the thought of not being able to have a transplant due to too many problems - or the fibrosis w/the MDS and blasts. If I had a choice and the situation was different I would have went for the transplant when I first got real bad 10 yrs ago and had the ATG but times were different and there wasnt as much success as there is now. Take all the advice you can get and weigh everything thru.
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MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan
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