Thanks for the replies
The registrar didn't give me a percentage of living or dying with a SCT, he just talked about the negative, that being dying, then being positive or just not saying anything at all. This was about 5 mins after receiving news of my MDS. So was still a bit in shock. But you have given me something else to look up.
Chirley I have read many of your posts and find them very informative..thank you. I have thought of going privately and asked the registrar last appt, but he said the consultant was one of the best, it's just I don't see him. The "doom and gloom" registrar has gone off on another rotation so will have some one else in September. I will ask again and see how it goes this time and probably do as you suggested, if I am not satisfied.
I did meet my Leukaemia co-ordinator last visit who gave me info about the phone chat. I will consider it when we get a land line as I only have a pre paid mobile at the moment.
Does anyone know anything about my other question about del 5q 7t?
Thanks again all. I really appreciate it.
Honey