Thread: Day -5/-4
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Old Sat Oct 5, 2013, 07:07 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Day -5/-4

Well because the placing of the port was so eventful my husband started chemo a day late. It's ok though Bc hes due to transplant on time this Thursday bc his Donor cells are arriving so late Wednesday.
His schedule is
-6 cytoxan
-5 cytoxan
-4 cytoxan campath
-3 cytoxan, campath
-2 TBI, campath, prograf starts
-1 campath
0 transplant

So far he is tolerating the chemo well and it just makes him act a little funny (like literally he's cracking us both up)
We have a little cooler full of a Fun mix of 8 oz sodas, Gatorade, water, ensure... Nurses like that bc they want him drinking a lot.
Good time of year for buying candy. The chemo and other IV drips put a funny taste in his mouth (and dry it out) so a mix of fruit flavored candies and mints has helped a lot.
Trying to keep it fun by picking up food from places we haven't eaten befor in Houston. Since he will not be able to taste for a bit or may not be hungry figured we'd splurge now
His WBC count went down 1 point after chemo yesterday but was back up almost 2 points this morning.... Is that weird? Nurses said that's normal until the chemo really starts working.
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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