Hi alawe,
You know I got the dx MDS Interm-1 2006. I received supportive therapy - Txs, Desferal and Exjade for iron overload and Neupogen for low WBS until 2010.
My dysfunctional platelets had decreased to 22 and I was afraid of a stroke. Then I accepted Thalidomide in a low dose, 50 mg/day, + Prednisone. My WBC decreased and I could only tolerate Thalidomide 4 caps รก 50 mg/day.
After 4 weeks my platelets started to increase and much later reached 180 - very high for me who had severe fibrosis from dx. My HGB increased and after 3 months I didn't need Txs - I had been Txs dependent from dx. My WBC increased very slowly and after 1.5 years I could stop taking Neupogen.
After almost 3 years my counts decreased and now I am trying Revlimid. Last week I received blood unit number 179 and 180.
About 30% of MDS patients respond to Thalidomide and the median time for response is 9 months but som individuels respond up to 3.5 years.
Hope you will have a positive response without adverse effects
!
Kind regards
Birgitta-A
74 years old. Del12p and -X.