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Old Thu Oct 10, 2013, 07:40 PM
riccd2001 riccd2001 is offline
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Join Date: Aug 2010
Location: Burlington,Ontario,Canada
Posts: 186
Hi Bob - just to add a bit to Neil's last point...

Most docs in Ontario (I assume that's where your Dad resides) recommend Chelation to keep control of serum ferritin (>1000ug/L) which will increase with each PRBC transfusion (>20bags).

From personal experience, I strongly recommend finding out his baseline of both ferritin and creatinine levels. Chelation therapy using Exjade, which has a negative side effect on creatinine, is now covered on a yearly basis by Ontario's Exceptional Access Program ( EAP ).

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BTW if his doc is looking ahead to SCT, Ontario currently does NOT cover such procedures for those 65 or over.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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