I think everyone's different but when my husbands been below 15-10 he starts getting petichi..especially if hes been on his feet working etc...
He also will have blood in his nose... No running but blood in the mucus or if he wipes his nose.
Sometimes if it's close to 10 he will have bleeding gums
Once he's in the upper 20's he doesn't get many symptoms.
Hope things are going well for y'all currently!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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