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Thank you for all of the responses.
@Whizbang - yes, i am married, so I will have my wife as a caregiver, and my insurance covers in-home nursing as needed for up to 100 days to give her the breaks she will need.
@SusanL - it looks like we will be starting at about the same time, taking the same strategy - improve the counts, go into the fight! Best of luck and we can check in on each other.
@Norma, thank you for the well-wishes
@DebS - i've been on the forums since initial diagnosis, but definitely appreciate the support and knowledge of the forums. thank you!
@tytd - My initial feeling was skepticism as well - are we sure this isn't just an anomaly? The problem is that the HGB dropped from 12.4 to 13.4, I suddenly feel tired, blasts have never been above 2.5% and the degree of dysplasia has increased. Platelets, my nemesis have been pretty darned steady at 31k, after spending 2 years in the 20k range. Marrow cellularity jumped about 15-20%, which also tells me that something changed. The peripheral blasts are new, we haven't ever seen those before. We have been lucky to have the same hemo-path on the last 4 marrows, so i think that I am probably covered on the consistency.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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