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Day 46 mds allo unrelated transplant, discharged to hotel advice?!?
Hey everyone, so I posted before but haven't in a while...I am day 46 today and got discharged from the nih yesterday to a hotel..I am on prednisone for some mild gvhd of the skin and gastro. They are tapering it down over the next few weeks..I am so nervous, I know it's probably just the steroids, but I am looking for feed back. I need advice, tips, successes stories. My ANC and counts are all good and I haven't even needed a blood transfusion or magnesium or anything... I feel like I am worrying for nothing. I am almost 100% chimera and my last bmb came back good. Should I really be worrying this much? Or am I like on the home stretch now? Or too soon to tell. Gosh I am overwhelmed.
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27 year old female diagnosed MDS RCUD 2012, GATA2, multiple carcinomas in-situ, SCT 10/03/2013 @NIH, chronic GVHD starting 11/2015
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