Thread: PNH free!!!
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  #17  
Old Fri Dec 6, 2013, 09:18 PM
DebS DebS is offline
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Join Date: Mar 2013
Location: IL, WI
Posts: 154
We are doing well. Doug is improving but it is slow.

Right now they are a little concerned about his weight loss. He is eating fairly well but continues to lose about 5 pounds a visit. He also has a mild rash on his chest and stomach. The doctor thinks that it is another round of mild GVHD and he is on his second packet of steroids.

But, his hemoglobin is 14.9!!!! We haven't seen that in months. His platelets are at 62. They have been all over the place from 300 to 42. Now they are rising and hopefully stabilizing.

I know that a little GVHD is good, but it always makes you so nervous.

I will say that he has had more energy with the rise in hemoglobin. We are at day 59.

You guys keep up the great work. We all want good news--especially this close to Christmas

Deb
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