More answers - finally.
Steve's appointment went better - we were able to find out that he is RAEB-T, and his risk assessment is off the scales - to quote, "beyond high risk". So, not great news. He's getting 100mg of Azacitidine x 5 days a month, off for approx. 21 days.
Doc says, he'll be on the Azacitidine for the rest of his life - luckily, he doesn't suffer any side effects and it seems to keep the AML pushed back and the MDS manageable.
I still can't believe that this is happening to him and fight my internal anger constantly.
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