Hi Deb,
Its good you are able to tolerate 1500 mg/day, how long have you been on chelation and are you able to have lesser side effects than when you started?
Do you monitor your kidney & liver functions regularly?
The heme doc says that with Asunra(the exjade equivalent in India), most tolerate well and if there is an issue, it normally happens within 1st week or so, after which the body begins to adapt to it.
Thanks for sharing your experience.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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