Do not give up be persistent. Do not understand why doctor reluctant giving his records to you. They are his records.
My husband was diagnosed May 2013 at the age of 69, with very low platelets 32, WBC 1.9, HGB 8.1. He was started on Vidaza in June at MD Anderson Orlando. He was given 2 units of blood and a unit of platelets.
After his second round of Vidaza things started to get better, along with green juicing and other at home things. (Papua leaf tea daily, along with multiple fruits including a lot of fresh papaya, mangos, pineapple, etc. and many, many prayers.We transferred him to Moffit center Tampa, Fl for follow up and continue there. In august his blood counts came back normal-and continue to be normal. The doctor said by looking at them he could not tell he had anything going on. He just had his second BMB and his blast have dropped to 3 per cent.
It is a frustrating disease for everyone involved. Stay strong to you and your family, you will need it. We have been very very Blessed and take advantage of one day at a time. Best wishes to all of you. Things can get better with a positive attitude. God Bless you. Kathy
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Kathy,wife of 69 year old male with DX June 2013 with MDS= RAEB 2refractory with Extra Blast Very High Risk WBC 1.9-RBC 2.29-HGB 8.1-PLT 32-, as of Aug 2013:. BMB 12/4/13= WBC 5.57/RBC 4.86/HGB 15.5/HCT 42.8/RDW 49.6/PLT 188. 3% blast.BMB 4/11/14 WBC1.6,PLT12,RBC2.6,HGB9.2
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