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Thanks Dan,
That does help.
I'm Ipss 1, but with blasts hovering around 9 I think I could be IPSS 2 in a heartbeat. My doctors biggest concern it this could take off to aml at any moment. And counts always continue to tick lower every month. With good hemoglobin (12.8) though I feel fine. I have the hla15 or something, which I'm told is good for cyclosporine/ immunosuppression treatment. ATG is questionable I guess. No chromo problems to date. I was told my cellularity is low, but not that low? (5-30% patchy). It was 20% about 3 years ago. I don't really fit mold, but does anyone with MDS. Age 52 now and half Asian and my Dad full Asian past from mds/aml 25 years ago.
I will question my dr. about dosage. So I have 4 dr. opinions 3 to vidaza and 1 to immunosuppression. Thanks again for the help and be healthy.
Happy Holidays to All!
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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