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Deb, wishing you & Doug well & hoping they release him soon.
Apparently Myfortic works exactly the same as MMF, but dissolves a bit lower in the gut so doesn't typically irritate the stomach so much. MMF gave me so much pain, I was in agony from it until I switched.
I only found out about Myfortic by chance from a friend who suggested i ask about switching to it because perhaps the MMF was causing my pain.
Once I asked about switching, I was told Myfortic isn't covered by all insurance companies for adult patients as its more expensive. I had to push for my nurse to confirm if it was covered & luckily it was. (though I would have been willing to pay for it out of pocket). I truly felt an immediate difference the day I switched.
Doug's numbers look great, especially his HGB. 16 is amazing for just under 100 days!
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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