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Old Fri Jan 24, 2014, 11:37 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Thinking of you

Aloha Bill!

I am so sad to read your turn of events. I had assumed that you had dropped off the forum because you were doing great, not that you were fighting other battles

Monosomy 7 is a very serious finding. So it would make sense that you'd want to try and buy time with the possibility of Vidaza/Dacogen putting it in remission. Perhaps you can then restart gene-targeted chemotherapy for your cancer. This seems to be such a hot-bed of research right now. Here is an article that I found out of UC Davis:

http://www.hindawi.com/journals/au/2012/364919/

If you haven't already, you should run your situation by Dr. Paquette. He is always responsive to his past patient's emails.

I will pray for your continued wisdom and strength in fighting this battle! Please keep us informed!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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