Thank you Greg for all those details. I think I will try to contact the NHI. It's worth trying.
My brother is starting to taper cyclosporin next month and he is really scared. Knowing that there might be a cause for relapse and that solutions exist would be a tiny bit comforting.
For the moment, the most difficult thing to handle is the pain in the joints. He hasn't been able to work since September last year and he can hardly walk. The doctors told him it might not be caused by cyclosporin but rather by the ATG treatment and that the pain may never go away.
He is so depressed...
It might be worth asking them at the NIH about that too.
Thanks again
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Steph, 25yo brother diagnosed with AA July 2013. Horse ATG Sept, currently on cyclosporin
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