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Newly dx with PNH
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Sun Feb 23, 2014, 06:14 PM
NLJabbari
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
You have a very smart wife
These are a couple of good places to start. Hope this helps...
AAMDS (About PNH)
http://www.aamds.org/about/pnh
Treating PNH in 2013 and Beyond
https://client.blueskybroadcast.com/...AMDSIF_072513/
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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