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5 month post bmt
Hi y'all just wanted to give an update my husband is 5 months out and doing really well. Glory to God! I am looking forward to when he is 'more in the clear' but it's nice to not be in constant fear and more in a watchful eye mode!
I know everyone's experience is different but I wanted to share my husbands. God bless to all of you on this site! Pt,loved one,caregiver etc
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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