I was told that I might have MDS because of my age . It turned out to be something else that only affects my red cells.
I go to Dr. Maciejewski twice a year from Dallas. I have been doing this since April 2008. It has been well worth the time and expense because I continue to improve.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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