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Lyle I'm sorry you are going through this it's a scary thing most of all at dx. Good news is you have a dx now so you know what your fighting!
Laura you guys have had such a tough time!!! I admire your strength and positivity!! Keep it up girl!!! I hope that things start getting better soon!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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