|
MDS
Hi JohnJames,
There is only one cure for MDS and that is a stem cell transplantation (SCT). Low risk patients can live many years with supportive treatment and your parent doesn't need any treatment att all for the moment.
Very positive that your parent doesn't have any other diseases.
The info about prognosis for MDS patients is old - often from 1997 when there hardly was any treatment at all.
As ccnarayanan write MDS is not hereditary.
In the Home page of this forum you can find info about different clinics at Medical resorces. Vanderbilt is labled NCI which means:
The NCI label NCI Comprehensive Cancer Center indicates a Comprehensive Cancer Center as designated by the National Cancer Insitute (NCI). These U.S. treatment centers have been found by the NCI to have "demonstrated reasonable depth and breadth of research activities in each of three major areas: laboratory, clinical, and population-based research, with substantial transdisciplinary research that bridges these scientific areas" and to have demonstrated "professional and public education and dissemination of clinical and public health advances into the community it serves."
Kind regards
Birgitta-A
75 yo. Dx MDS Interm-1 2006. Supportive treatment until 2010 when I started to take Thalidomide. Positive response. Now taking Revlimid since 2013 with good response. HGB 13.7, WBC 5.6 and platelets 124.
|