Birgitta I used to go to the same treatment centre company (different hospital) I often had neuts of 0.1 or less and even zero but I was never treated as a neutropenic patient and isolated or offered Neupogen.even when I was admitted with infection and severely neutropenic I was put in a shared room with a lady with a chest infection. It really wasn't appropriate.
Glenda, I hope you feel better soon.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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