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Old Tue Apr 8, 2014, 06:34 PM
Caregive Caregive is offline
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Join Date: Nov 2013
Location: USA
Posts: 61
Not everyone can get bmt or sct due to age, other illnesses and other reasons. It's complicated. My husband couldn't tolerate the lead up to part so he gets transfusions every three or four weeks and Exjade for chelating the iron out of him which he acquires from the donors. So far so good. And I really really focus on diet, leaving out gluten at home anyway, milk no, little meat at home, low salt so as to maximize the possibilities for his health. Also in his case supplements of B12 and folate. I try to talk him into going for walks too. Oh, and drink lots of water.

Read as much as you can on solid sites and always go to the doc with a list of questions. Also feel free to request referal for a second opinion. We got refered to Fred Hutchinson hospital in Seattle. All you info has to go there ahead and it's darn timeconsuming but you'll get in and again have your questions ready for whoever sees you.
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Caregiver for husband
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