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I have a feeling some of these rare diseases are not so rare. I asked where my husband is treated and was told they have about 100 people. I sorta doubt that number but at least that means many more than I figured. So I asked why they don't have a support group. I was given a phone number to call one of their staff about that. My husband would really like to talk to others with MDS. So let's see who else responds here with ideas on how many have this illness.
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Caregiver for husband
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