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Just diagnosed
Hello everyone,
I'm 23 and I was just diagnosed with SAA and PNH a few weeks ago, and it is barely sinking into my head. I already got the vaccination a week ago and my doctor wants to start me on Soliris on Thursday. My two siblings just sent back their DNA kits and they have not arrived at the hospital yet.
I am anxious to find out if my siblings match, and this waiting is very difficult.
The prospect of a BMT is making me nervous as well, because of the high-dose chemotherapy and the likelihood of infertility.
My doctor wants to find out if the Soliris will have a substantial effect on my blood counts. I feel like I've just been thrown out into this completely new territory, with worries I never knew I could have. It has been encouraging reading through the forums, so thanks for that!
I'm sure I will be asking some questions on here soon.
Best,
Shana
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