[Kathy S]

My husband was on Vidaza for 9 cycles. After only 2 cylcle he went into complete remission last Septamber and we thought it would be easy sailing for at least a year. He continued on Vidaza. December BMB confirmed he was in remission. In January I started to notice that his counts were starting to drop, same in February (doctors paid no attention to it), March they had dropped significantly and so they called for another BMB. Confirmed he was definitely out of remission and his counts tumbled fast. His platelets last week were 7 and his HGB 7.5. He has had two platelets and one blood unit. He is now off Vidaza and was told at Moffitt there is nothing they can do unless he wants to try another clinical trial but his liver enzymes are too high for him to get into it. Knowing what we know now I wish he had come off Vidaza when he went into remission and gone directly to alternative medicine but fear keeps you going.
We have now turned to alternative medicine and he is trying to detox all of the poisons that were put into his body. Hind sight is just wonderful, but sometime it is too late. There is no match for transplant and he refused to go that route anyway. Best of luck to your dad. Not easy decisions as to what to do. It is all in Gods hand now and we follow His guidance.