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Old Tue Jun 3, 2014, 12:10 PM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi Bhasky,

It's great that he responds to epo+Gcsf! Which brand of epo does he use? My mother initially had little response to high dose Eprex, then when the brand changed to erykine she had no response and then no response to Eprex also. This is a strange disease and very little goes by logic and there is hardly any logical explanation to why something did or did not work. Blood counts can be stable for some and for some just start deteriorating quickly. It's good if u keep track of his reds, whites and platelets. Since his reds and whites are affected does he have the RCMD category of mds?

I did not know there was an Apollo hospital is Cal, I thought it was still woodlands and Bellevue ruling the roost there still. I was born in Woodlands
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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