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Old Sun Jun 22, 2014, 04:08 PM
sbk007 sbk007 is offline
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Join Date: Apr 2013
Location: NY
Posts: 322
Confusing

I think it would be helpful to you if you could ask the second doctor why his first exam prompted him to tell you it was most likely low risk MDS if at all and then his second visit reversed so as to agree with the first doctor.
It might be uncomfortable to put him on the spot but a lot of time its justified. What is it that changed the 2nd doctors recommendation to match the first doctors recommendation. OF course the best thing would be to get him to a center of excellence where they see MANY patients with these diseases. Most local docs/hematologists have maybe a few patients with these rare diseases whereas the COE's have clusters.
All the best
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